Hello from Anne
Since Friday, Jerry has been slowly weakening. He cannot now sit up unaided. Nutrition has now ceased, as he is unable to swallow any food and he cannot drink except for sips of water. Fortunately, his tablet medication has now been changed to liquid in a syringe except for one small crushable tablet. As he had been having extreme difficulties taking the tablets, this has relieved him of quite a lot of distress. Also, fortunately, he is not in pain and is receiving all the care that he needs. He is very well looked after by the nursing staff.
He is very tired now and does sleep a lot but also has enjoyable waking moments. Recently he has enjoyed looking at his own art works and showing them to others. He has also enjoyed chats with people.
Fortunately, Jerry is still Jerry. When awake he is completely aware of what is happening around him and communicates constantly – taking charge of everything associated with him. He has been talking a lot about what is happening to him and expressing his wishes and feelings.
One thing I have not expressed is how all the nursing staff that come to the house love him and his home. Lots of them say 'I wish I had met him before, he is such a nice man'.
We have a lot more support at home now with Hospice at Home and Macmillan nurses and Marie Curie nurses – all of whom have been faultless. In particular, we have someone to stay with him overnight.
At the moment, all plans are for him to move to the hospice on Wednesday.
I'll keep you posted.
All The Best
Anne x x
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I'm so glad to hear of all this good nursing support not only for Jerry but also for you Anne. I hope you can sleep well at night while someone stays with Jerry. I know he will be Jerry in essence until the end. Physical illness and decay cannot obliterate a loving spirit. My loving thoughts to you and Jerry
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